ICD-10 Code: Q87.88

CTNNB1 Connect & Cure

Finding treatments and a cure for CTNNB1 Syndrome while raising awareness and connecting families.

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What is CTNNB1 ?

CTNNB1 Syndrome is a rare genetic disorder related to the CTNNB1 gene.

How We Help

By funding CTNNB1 research, we are creating a roadmap for a cure.

Family Support

Get connected with other children and parents in the CTNNB1 community.

Help Find a Cure

Learn how to get involved to support research and spread awareness.

Facebook Page Offline

We wanted to let you know that our CTNNB1 Connect and Cure Facebook page was recently compromised and is currently unavailable. Please know that our team is actively working with Meta/Facebook to restore the page as quickly as possible.

Our community is built on hope, collaboration, and supporting our children, and that mission hasn’t changed. We are taking all the right steps to get our page back.

In the meantime, we’ll continue sharing updates, resources, and ways to stay connected right here. Thank you all for your patience, understanding, and unwavering support — we’re so grateful for each and every one of you.