Advancing CTNNB1 Cures and Treatments (ACCT) was formed as a nonprofit in 2019 to fund research that helps us better understand CTNNB1 Syndrome. By working with globally renowned doctors, we’re on the path to developing treatments and laying the groundwork to cure this rare disease. In 2022, we formally merged with CTNNB1 Syndrome Awareness Worldwide (CSAW) to also connect affected families, create awareness, and provide information and resources about CTNNB1 Syndrome. These combined goals are reflected in our new name, CTNNB1 Connect and Cure.
Our organization is about community—connecting children who are affected by this rare genetic condition and supporting their parents. The Cochran and Dashiell families who founded ACCT experienced the long medical journeys that it takes to get a diagnosis. To make it through, we all need each other to help our kids reach their full potential.
“The challenges Declan faces daily bring my husband and I to our knees, and as a result, we are determined to provide him with a life of love, joy and opportunity just like we have for our daughter. This is why we have helped form this incredible charity to start treatment research that will help our Declan and other beautiful children like him live their best lives.”
Lauren Cochran, Board President
Our Mission
Advancing CTNNB1 Cures and Treatments DBA CTNNB1 Connect and Cure is a nonprofit organization dedicated to funding research to find treatments and a cure for CTNNB1 to help children live their best lives possible while raising awareness and connecting families.
Our Vision
We aim to find safe and effective treatments to help all children and adults diagnosed with CTNNB1 Syndrome as quickly as possible. We strive to improve all areas of development including gross and fine motor function, language and learning/cognition. We endeavor to create awareness and connect affected families.
Who We Are
Our team is made up of dedicated parents, business professionals, healthcare specialists, researchers, and volunteers. Learn more about our board and staff.
Our Impact
To date, our organization has raised more than $575,000 for research. See how our mission and vision has been put into action through innovative techniques that build our knowledge of the CTNNB1 gene and the path to a cure.