As a 501(c)(3) non-profit organization, we value transparency and accountability in all we do. Our charity was established under the name Advancing CTNNB1 Cures and Treatments (ACCT), which to date is still the legal name used for all financial transactions, though our marketing name is now CTNNB1 Connect and Cure. We are proud to hold a 2023 Gold Seal of Transparency with Candid.

We are a 100% volunteer-run organization and maintain minimum operating expenses. This allows us to maximize our donors’ contributions toward our goal of funding research for treatments and hopefully a cure for CTNNB1 Syndrome.

Questions? Please contact us at

2021 – 990

2020 – 990

2019 – 990

Candid Guidestar Gold Transparency Seal Nonprofit