Photo collage of 6 children with CTNNB1 syndrome

Meet Our Champions

Our Stories

  • Child with rare disorder CTNNB1
    Meet Isaac
    Isaac is 7 years old and currently in year 3 at school in the UK. Isaac is the most determined child I have ever met, always pushing himself to do more and try again. He…
  • Toddler With CTNNB1 Syndrome
    Meet Mae
    Hi, I’m Mae and I am 2 years old. I am the big sister to Louise who just turned 1. My mommy and daddy’s names are Emily and Joe, we all live in Minnesota. I’ve…

Gallery of Champions

Savannah from South Carolina
Westin from Louisiana
Vivienne from Charlotte, NC
Titus from Arkansas
Taylor from Minnesota
Riley from Oklahoma
Sarah from Scotland
Sasha from Moscow, Russia
Savannah from Illinois
Sethumi from Australia
Preston from Illinois
Poppy from Australia
Riley from Texas
Nicolas from the UK
Naël from France
Mafalda from Portugal
Maddox from California
Mackenzie from Canada
Liam from Delaware
Klaas-Jan from the Netherlands
Kate from Washington
Kareem from West Bank, Palestine
Julia from Caxias do Sul- Brazil
Jordan from Ohio
Isaac from the UK
Imogen from the UK
Grady from Florida
Frankie from Jersey, Channel Islands
Ford from Seattle
Emily from Ohio
Emilie from Pennsylvania
Elise from London
Eiza from Utah
Declan from New Jersey
Daniel from Spain
Chloé from France
Caroline from New York
Carlotta from Italy
Avery from California
Asya from Turkey
Anna from Cleveland, Ohio
Alyssa from North Carolina
Alexander from Germany
Adelaide from New Jersey
Aahren from Texas
Ezra from California
Addison from Texas

Join the Fight

There’s a way for everyone to get involved, whether you’re a family member, friend, researcher, healthcare provider or other supporter. Help our champions reach their full potential!

Support Our Champions