Please join us for our first in-person CTNNB1 Research Conference and Family Meeting on June 24 at Drew University in Madison, NJ. During this conference, you will hear about the incredible research CTNNB1 Connect & Cure is funding to develop a therapeutic for our patient population and learn more about CTNNB1 Syndrome.

Nearly 40 patients and their families will be attending as part of our Natural History Study with Columbia University under the leadership of Dr. Wendy Chung. We invite you to meet our children, hear about our research and learn more about our non-profit spearheading this effort.

Event Itinerary