We host events throughout the year as a way to increase awareness of this rare disorder, show support for our community, and raise money for CTNNB1 research.
-
CTNNB1 Connect & Cure Natural History Study with Columbia University
Welcome to our CTNNB1 Natural History Study Page in collaboration with Columbia University. This study will consist of assessments to advance the clinical understanding of…
Thursday, June 22, 2023 – Friday, June 23, 2023 Drew University
Ehinger Center
36 Madison Avenue
Madison, NJ 07940 -
CTNNB1 Connect & Cure Research Conference and Family Meeting
Welcome to our CTNNB1 Research Conference and Family Meeting Event Page. Here you will find everything you need to plan for your trip. Conference Details…
Friday, June 23, 2023 – Saturday, June 24, 2023 Drew University
Ehinger Center
36 Madison Avenue
Madison, NJ 07940