John is 5 years old. He is a very happy little boy. John was diagnosed with PHPV when he was 2 weeks old but was diagnosed with CTNNB1 when he was 3. He loves water play, light up toys and “Hey Duggee”. John can walk a very short distance unaided and wears splints (AFOs). John is most happy getting cuddles and lots of attention from people. He is very popular with people who adore him from first sight. He currently attends Castle School which is a special needs School that deals with all his needs and requirements. He is nonverbal but has no problem getting himself heard!
News