We’d love to have you as part of our community. Check out the various ways to get involved below and help us work toward our vision of a cure for CTNBB1 Syndrome.

Donate Online

When you make a donation to Advancing CTNNB1 Cures and Treatments (DBA CTNNB1 Connect and Cure), 100% of your gift goes to research. Make a tax-deductible donation online.

Host a Fundraiser

Accelerate our ability to fund cutting edge research by fundraising on our behalf. Host your own event or team up with other families, set up a Facebook Fundraiser and more!

Attend an Event

From fundraisers to community get-togethers, see our upcoming events. No matter where you live, be sure to tune into our Annual Research Conference.


CTNNB1 Connect & Cure depends on the talent and energy of our volunteers to create awareness and fund research for CTNNB1 Syndrome. Sign up to help!

Spread the Word

There are opportunities throughout the year to celebrate and recognize the CTNNB1 community. Mark your calendars for the annual Rare Disease Day on February 28 and CTNNB1 Awareness Day on July 25. Follow our Facebook, Instagram, Twitter, and Podcast for the latest updates.